There are estimated to be over 40,000 children and young people living with a life threatening and / or life limiting illness across England and this number is rising. Often the child or young person also has very complex care needs and requires high quality around the clock care. This understandably puts a huge strain on families coping with such a diagnosis and they may require a variety of support to enable them to continue to care for their child. This support needs to be flexible and provided at the time and place that it is needed.
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