The Yorkshire and Humber Children’s Palliative Care Network (YHCPCN)

The Network links together the four children’s hospices, 14 District General Hospitals, 2 tertiary centres (Leeds and Sheffield), community nursing teams, bereavement support services, local authority disability services and local special schools across our region all working together to support children and young people with life limiting and life threatening conditions. The four children’s hospices in the region are Bluebell Wood Hospice located in Sheffield South Yorkshire,  Forget me Not Children’s hospice located in Huddersfield West Yorkshire, Martin House Children's hospice located in Wetherby North Yorkshire and St Andrews or Andy's located in Grimsby East Yorkshire. 

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The Network is in the process of becoming a Managed Clinical Network (MCN) and is made up of an executive steering group which steers the work of the 2 sub group forums, the clinical & research forum and the workforce and education forum. The executive steering group is chaired by Dr Susan Picton and has representatives from a wide range of organisations including representatives from each hospice in the Region, a neonatal rep, sub group forum leads, a ccg rep, a research rep, a rep from the APPM (Association for Paediatric palliative medicine), community nursing rep and specialist nursing rep. The clinical forum includes representatives from each district general hospital and community nursing team in addition to allied health professionals, an education representative and a social care representative. The workforce and education forum is a multi agency group of people working to bring together best practice in training and education across the Region and Nationally.​​​​​​​

Antenatal referral form

The antenatal care referral form has been developed for use across the four children's hospices in the Yorkshire and Humber region. It is for professionals involved in antenatal care where there is a diagnosis or recognition of a possible life-limiting condition of the baby. Please complete the form, with consent of the mother, and send to the email contact for the chosen hospice listed at the bottom of the form.

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Recognising children and young people with palliative care needs leaflet

This leaflet helps professionals to recognise babies, children and young people who may benefit from palliative services and care. It also aims to highlight some key areas to consider at various stages of their care.

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Urgent discharge paperwork

This document aims to support health care professionals in planning and coordinating the urgent transfer of children and young people from hospital to home or hospice in the last hours or days of life. We hope the document will help professionals to plan, consider and communicated different aspects of a child’s care to ensure this is as smooth, safe, efficient and comprehensive a process as possible.

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Urgent transfer guidance notes

Guidance notes accompanying paperwork which aims to support health care professionals in planning and coordinating the urgent transfer of children and young people from hospital to home or hospice in the last hours or days of life. We hope the document will help professionals to plan, consider and communicated different aspects of a child’s care to ensure this is as smooth, safe, efficient and comprehensive a process as possible. 

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Safeguarding study day presentation 1

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Safeguarding study day presentation 2

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Safeguarding study day presentation 3 - CDR process

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Safeguarding study day presentation 4 - legal issues

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Structure of the MCN

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Strategy and work plan

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Short Strategy Document

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Rapid Transfer for End of Life Care: Clinical Guidelines

Below are the Clinical Guidelines for the Rapid Transfer for End of Life Care.

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Rapid Transfer for End of Life Care: Guidance Notes

Attached are the Guidance Notes for the Rapid Transfer into End of Life Care.

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24/7 Care Options Appraisal

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Our Hospices

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New APPM Formulary

As of December 2019 there is a new formulary for medical drugs, available through the attached link. All medical professionals are encouraged to delete the previous version and download the new iteration.

Follow the link below:

https://www.appm.org.uk/guidelines-resources/appm-master-formulary/

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Communications Support EoI

Expressions of Interest required for Communications Support for the network. Closing date Friday 9th July 2021. 

Contact  info@yhcpcn.org.uk for further information

 

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Safeguarding study day programme - 21 January 2022

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Safeguarding study day - Learning outcomes - 21 January 2022

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Perinatal study day - Programme - 18 February 2022

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Latest News

Events coming up!

17th May 2022

There's a busy time ahead for the ...

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New APPM Formulary

4th March 2020

As of December 2019 there is a new ...

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Twitter Updates

YHCPCN - 27/05/2022

RT
@HannahLinane: Transition for young people with palliative needs - a great presentation by Dr Archana Soman @YoHCPCN @CHIatCrumlin @Tem

YHCPCN - 27/05/2022

RT
@FionaMcElligott: Great to hear of the skilled work of the @YoHCPCN in promoting the involvement of young people in their own care, and…