The Yorkshire and Humber Children’s Palliative Care Network (YHCPCN)

The Network links together the four children’s hospices, 14 District General Hospitals, 2 tertiary centres (Leeds and Sheffield), community nursing teams, bereavement support services, local authority disability services and local special schools across our region all working together to support children and young people with life limiting and life threatening conditions. The four children’s hospices in the region are Bluebell Wood Hospice located in Sheffield South Yorkshire,  Forget me Not Children’s hospice located in Huddersfield West Yorkshire, Martin House Children's hospice located in Wetherby North Yorkshire and St Andrews or Andy's located in Grimsby East Yorkshire. 

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The Network is in the process of becoming a Managed Clinical Network (MCN) and is made up of an executive steering group which steers the work of the 2 sub group forums, the clinical & research forum and the workforce and education forum. The executive steering group is chaired by Dr Susan Picton and has representatives from a wide range of organisations including representatives from each hospice in the Region, a neonatal rep, sub group forum leads, a ccg rep, a research rep, a rep from the APPM (Association for Paediatric palliative medicine), community nursing rep and specialist nursing rep. The clinical forum includes representatives from each district general hospital and community nursing team in addition to allied health professionals, an education representative and a social care representative. The workforce and education forum is a multi agency group of people working to bring together best practice in training and education across the Region and Nationally.​​​​​​​

Structure of the MCN

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Strategy and work plan

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Short Strategy Document

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Latest News

Annual Conference 2019: Ethical Dilemmas

13th March 2019

YHCPCN Annual Conference date ...

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Paediatric palliative care module development

10th April 2019

The paediatric palliative care module ...

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Twitter Updates

YHCPCN - 17/04/2019

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@MaruzzaCongress: How to talk to your kids about death, depending on their age https://t.co/8mTGAzi4LS

YHCPCN - 17/04/2019

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@archsom: “Palliative” is not a euphemism for death. Confusing it so means 1. Families unlikely to understand what you mean and 2. stigm…

YHCPCN - 17/04/2019

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@PalliativeMedJ: There was fluidity around the concept of ‘home’ and around the location of preferred place of death itself towards the…