Martin House Childrens Hospice

Martin House Childrens Hospice

Martin House provides family-led care for children and young people with life-limiting illnesses. We have been supporting families across West, North and East Yorkshire since 1987, offering care at our hospice, in hospitals and community settings, and in families’ own homes.
 
Our services include planned care, emergency care, symptom control, community support, end of life care, and emotional and psychological support. After a child’s death, families can make use of the hospice’s specialist cooled bedrooms and receive support from our team. We offer bereavement support to all families where a child has died from a life-limiting illness, even if they did not access hospice care.
 
We accept referrals for children with life-limiting conditions up to the age of 19, including babies diagnosed in the antenatal stages. Our purpose-built teenager and young adult unit supports young people up to the age of 30. Anyone can make a referral, provided they have the consent of the family.
 
Specialist cover in paediatric palliative medicine for West, North and East Yorkshire is provided from, and based at Martin House. Our team of doctors specialises in symptom control, end of life care and advanced care planning, and are available 24 hours a day, seven days a week by calling Martin House.
 
Martin House is a research-active organisation and in 2017 we were delighted to launch the Martin House Research Centre, in partnership with The University of York. We are also committed to a program of clinical education, enabling others to provide high quality palliative care to children and young people, together with their families. We are currently one of only three specialist training places in the UK for consultants in paediatric palliative medicine alongside placements in London (Great Ormond Street Hospital) and Cardiff.

See more at www.martinhouse.org.uk

Martin House provides family-led care for children and young people with life-limiting illnesses.
 
Martin House has offered support to families across West, North and East Yorkshire since 1987, offering care at our hospice, in hospitals and community settings, and in families’ own homes.  The hospice is a place of care and support where children, young people and their families can stay for rest and practical help, with access to services for as long as they might need them. 
 
The services offered by Martin House include planned care, emergency care, symptom control, community support, end of life care, and emotional and psychological support.
 
Planned Care
This allows the whole family to have a break, with as much or as little input as they would like. We offer an average of four stays per year.
 
Symptom Control
Due to the complexity of the conditions of many of those referred to Martin House, there are often times when new symptoms need addressing or existing symptoms are causing distress.
 
Emergency Care
Sometimes things happen that cannot be planned. It may be that there has been a family crisis, or a change in the child’s or young person’s condition. This may mean that managing at home is difficult. On these occasions Martin House is able to help for a few nights.
 
Step Down from Hospital
Sometimes when a child or young person has been in hospital for a while, the parents or carers need additional support for a few days, prior to going home.
 
Withdrawal of Active Treatment
Professionals may at times come to the decision that life sustaining treatment is not in the best interests of the child or young person. Martin House can be a less clinical, more appropriate, environment to support the child and family as active treatment is withdrawn and the emphasis is on comfort measures.
 
End of Life Care
We can provide care at the end stages of their illness.  Following death, we have cooled bedrooms where a child can stay after they have died, as well as a cool ‘cuddle cot’ for babies.  We offer support to families throughout the process and in bereavement.
 
Bereavement Support
After a child’s death, families can make use of the hospice’s specialist cooled bedrooms and receive support from our team. We offer bereavement support to all families where a child has died (all causes), even if they did not access hospice care. 
 
 
Facilities and Accommodation
Martin House has 15 bedrooms for children, teenagers and young adults with life-shortening conditions. There are nine beds in the House for the younger children and six beds in the Lodge for teenagers and young adults.  There is ensuite accommodation for parents and carers. Two bedrooms, one in each building, are kept available for emergency admissions.
 
The facilities available at Martin House include a chapel, sensory room, recording studio, art room, play room, music room, education room and large recently redeveloped outdoor play areas with equipment suitable for our children and their siblings.
 
Whitby Lodge
Whitby Lodge is our purpose built facility for teenagers and young adults. There is a different atmosphere in the Lodge, with the focus more on providing a safe environment where young people are encouraged to make their own choices.  Families do not generally stay with the young person, although there is a bedroom which parent scan use when the need arises. 
 
Young people can have friends and relatives over 13 years of age to stay with them if they wish.  There is a hi-tech ‘Den’ which has a state of the art film screen and game consoles.
 
 
Referrals
We accept referrals for children with life-limiting conditions up to the age of 19, including babies diagnosed in the antenatal stages. Our purpose-built teenager and young adult unit supports young people up to the age of 30. Anyone can make a referral, provided they have the consent of the family.
 
 
Our Doctors
Specialist cover in paediatric palliative medicine for West, North and East Yorkshire is provided from, and based at Martin House. Our team of doctors specialises in symptom control, end of life care and advanced care planning, and are available for queries, consultation and referrals 24 hours a day, seven days a week by calling Martin House.
 
Martin House is committed to a program of clinical education, enabling others to provide high quality palliative care to children and young people, together with their families. We are currently one of only three specialist training places in the UK for consultants in paediatric palliative medicine alongside placements in London (Great Ormond Street Hospital) and Cardiff.
 
Doctors see patients in the hospice, in their homes, and also in hospital.  Our doctors have a range of skills and experience ensuring that the varied needs of the children can be met. The doctors often assist and support families in gaining access to other services and also liaise with other members of the multidisciplinary team.  Our doctors look after children and parents from as early as the antenatal period and continue to look after young people with life-limiting conditions up to the age of 30, particularly being available for support during the transition period, where care is transferred from paediatricians to adult consultants.
 
In 2016, Martin House appointed a second Consultant in Paediatric Palliative Medicine and in 2017 appointed a Nurse Consultant.
 
Community Support
Martin House offers a range of community care services to families, including nursing, medical, psychological and bereavement care. The medical team provides cover 24 hours a day, 365 days of the year and is available to both families and professionals. Specialist psychological care is provided by a Consultant Clinical Psychologist, working with the children, young people and
their families and also available to other professionals.
 
The community nursing team consists of one full-time and three part-time nursing posts and one part time nursery nurse, working especially with brothers and sisters in the school holidays. In collaboration with our medical team, the community team provides cover seven days a week and is flexible according to a family’s needs.
 
The community nursing team offers one-off and regular home care to a number of children across our region. Professionals and families can contact Martin House at any time for medical and nursing advice. Input is reviewed every eight weeks and there is liaison with local care providers regarding their input. Within this framework continuing support depends on:

  • Individual family needs
  • Ongoing symptom control issues
  • Families needing a link with Martin House if they are not ready to use the hospice. This can be provided within the family home in conjunction with local care providers.

 
The community medical and nursing teams also provide emergency and crisis input, hospital visits, planned care for special occasions and support visits to the family. They are also able to attend case reviews, as well as liaising and meeting regularly with local community paediatric nursing teams.
 
Our service works in partnership with, and aims to complement, other services, including hospital teams, children’s community medical and nursing teams, health visiting services and social services.
 
Martin House has had a well-established community service for many years, but currently it is in the process of further developing this service. In 2015 the community bereavement service was extended, offering bereavement care to families who had not previously used Martin House. The intention was to increase the accessibility and equity of quality bereavement counselling throughout our region.
 
The new service accepts referrals relating to the death of a child with a life-shortening condition, ranging from babies diagnosed antenatally to young adults up to the age of twenty five. Recently, these criteria have been extended to include any child death, including sudden or traumatic ones (with the exception of stillbirths). The work is usually with parents, although support for other family members can also be arranged. Siblings, as well as parents, are able to access groups and a day of remembrance at Martin House.
 
Research
Martin House has had a longstanding commitment to research, both in supporting studies and acknowledging the importance of research in decision-making and planning related to the care of children and their families. This commitment is perhaps best demonstrated in the contribution to funding a research post, first at the University of Leeds, and more recently at the University of York. This research partnership has resulted in work of international significance in such areas as the numbers and characteristics of children with potentially life-limiting conditions.
 
In January 2017 this partnership took a further step forward through the opening of the Martin House Research Centre at the University of York.
 
Support Groups
In addition to the day to day care provided for children and their families, there are also several groups run by the hospice which provide additional support.
These include parents’ days, a group for siblings of children who have been referred, a bereaved parents’ group, bereaved grandparents’ day and also support groups for children who siblings have passed away.
 
Useful contact numbers
Switchboard 01937 845045
Martin House 01937 844836
Whitby Lodge 01937 849529
 
Email
care@martinhouse.org.uk
community@martinhouse.org.uk
communitybereavement@martinhouse.org.uk
 
Website
www.martinhouse.org.uk
 

Support for Families

There are a number of organisations providing support to families with children with life limiting conditions across Yorkshire and Humber and it can be difficult to know where to start sometimes. The service finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.

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Support for Professionals

The Network provides access to regional training, sharing good practice and a Regional Annual Conference for professionals working in Children’s Palliative Care across the Region. There are links to CPD and available training resources available through this website.

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Bereavement Support

There are a number of organisations providing bereavement support to families with children with life limiting conditions across Yorkshire and Humber. The support finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.

Find Out More