Andy’s, at St Andrew’s Hospice, provides free specialist care and support for babies, children and young people up to the age of 25 with life-limiting illnesses, and their families, from diagnosis onwards.
We provide support across the wider counties of Lincolnshire, Hull and East Yorkshire, including palliative care in a friendly home-from-home environment with highly trained and dedicated staff, and we are committed to our vision of ‘Making Each Day Count’.
Palliative care for children and young people is an active and total approach, from the point of diagnosis and throughout all stages of an individual family’s journey. It embraces physical, emotional, social and spiritual elements, and focuses on the enhancement of quality of life and support for the entire family.
Care can be introduced at any point in a child or young person's life, and it is completely individual. Some children may require palliative care from birth, while others need support as their condition deteriorates.
It is important to understand that the term hospice is from the same linguistic root as ‘hospitality’. It can be traced back to medieval times, when it referred to a place of shelter and rest for weary or ill travellers on a long journey. Here at Andy’s, we provide a space for rest and respite for families on their journey and as such, we are a bright, fun, colourful and welcoming place to be.
What Care is Available?
1) Short breaks known as respite, where children or young people stay with us from a few days to a week, either with or without their family, depending on their needs, wants and desires. This is provided with 24/7 nursing.
2) Day care – children or young people can access our service from 9am to 4pm during the week.
3) Community care for families who need support in their own home.
4) Symptom management to address distressing symptoms.
5) End-of-life care for children or young people who are approaching the end of their journey.
6) Care after death in a special temperature-controlled bedroom for children or young people who have died.
7) Support for families following the death of their child/ brother or sister.
Who is eligible?
We use categories supported by Together for Short Lives, a UK-based charity, as part of our eligibility criteria.
Diagnosis is only part of the process. The spectrum and severity of the disease and subsequent complications, as well as the needs of, and impact on, the child and family are taken into account.
- Group 1: Conditions for which curative treatment is available but may fail such as cancer, irreversible organ failure, where specialised palliative care services may be necessary alongside curative treatment, during an acute crisis, or if treatment fails.
- Group 2: Conditions where there may be long periods of intensive treatment aimed at prolonging life to allow for participation in normal childhood activities, but premature death is still possible, such as Duchenne muscular dystrophy.
- Group 3: Progressive conditions without curative options where treatment is exclusively palliative and may extend over many years, such as Batten disease and mucopolysaccharide diseases.
- Group 4: Irreversible but non-progressive conditions that cause severe disability, leading to susceptibility to significant health complications and therefore likelihood of premature death. This is a very complex group and as such it can be unclear, so we regularly assess Group 4 children to ensure they would still benefit from our services.
How to refer
We can take referrals over the telephone from anybody involved in a child’s care: doctors, nurses, occupational therapists, physiotherapists, parents, grandparents etc. All we ask is that the child’s family have given consent for the referral to be made. Next, an appointment will be made for staff to visit the family and complete an assessment of the child’s needs and care requirements.
Catchment area and local services
Our catchment area is only provided as a guideline and accommodations can be made for families who feel our services may be more appropriate than closer facilities.
Currently, our catchment area includes the East Riding (Bridlington, Driffield, Beverley, Hornsea, Withernsea), Hull, North Lincolnshire (Scunthorpe, Brigg, Barton-upon-Humber), North East Lincolnshire (Grimsby, Cleethorpes, Immingham) and Lincolnshire (Lincoln, Gainsborough, Louth, Boston, Skegness, Spalding, Sleaford).
While you’re here - family
Here at Andy’s we work with families as a whole unit and as such, have services for all. We have private family accommodation with enough space for additional family members if required, as well as kitchenette and lounge with private facilities such as a washing machine, fridge and TV.
We are also able to support families to stay in the same room as their child on a sofa bed, if desired.
The hospice is home to The Retreat, a wellbeing centre offering complementary therapies such as massage and reiki, as well as activities including creative writing, Knit and Natter groups and gardening. We also have a spa pool and hair and nail studio.
We have a group of family support workers who can assist with emotional and financial issues and who provide support group services for parents. They also facilitate sibling support groups for families currently accessing care, or for whose child has accessed care previously. Our bereavement support team provides help to anyone who has expereinced a child death even if their child did not access our services.
While you’re here – child
We have a dedicated creativity team who organise a wide range of crafts and fun activities for all the children and young people to enjoy. We also have access to a range of organisations and charities which visit and offer animal-related therapy, and as well as running regular events on the unit, we go on regular outings locally and plan trips further afield to farms, restaurants and much more. We also have access to the hydrotherapy spa pool in The Retreat for pool parties and activities involving water.
Additional care areas
We have experts in Advance Care Planning (ACP) who can contribute to or initiate an ACP when the time is right for the family, encompassing the wants and desires in life and death of a child and their family. This is carried out in partnership with families, medical professionals and our Family Support Team as appropriate.
We have the capacity to care for children and young people after death through the use of our special temperature-controlled bedroom. This facility can also be used to care for a child or young person who has passed away in the community or in a local or regional hospital, for families who want to be closer to home or away from a clinical environment. This service is available to anyone, regardless of whether they have accessed us before, and just requires a telephone referral.
Get in touch
You can get in touch and find out more in a variety of ways. Call the hospice on 01472 350908, drop in or visit our website, www.standrewshospice.com. You can also find us on Facebook, at www.facebook.com/standrewshospice, and Twitter, at www.twitter.com/helpstandrews
Support for Families
There are a number of organisations providing support to families with children with life limiting conditions across Yorkshire and Humber and it can be difficult to know where to start sometimes. The service finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.Find Out More
Support for Professionals
The Network provides access to regional training, sharing good practice and a Regional Annual Conference for professionals working in Children’s Palliative Care across the Region. There are links to CPD and available training resources available through this website.Find Out More
There are a number of organisations providing bereavement support to families with children with life limiting conditions across Yorkshire and Humber. The support finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.Find Out More