Project ECHO

Through the bid submitted to Hospice UK in October 2019, YHCPCN has been selected along with two other organisations nationally to develop a Project ECHO collaborative transitions hub across YHCPCN.

The aim of the National Transitions ECHO is to transform care for young people (16-25) with complex and life-limiting conditions. Due to the positive effects of integration of collaboration, three areas have been chosen (YHCPCN, Solent NHS Trust and Keech) to become hubs for sharing their work through ECHO methodology. It is to be a three year project.

Confirmed partners within the YHCPCN are Sheffield Childrens’ Hospital, St Andrew’s Hospice and Leeds Teaching Hospital Trust, providing regional coverage through a hub in each ICS area. St Luke’s Hospice will also support the project.

The four areas felt to be of urgent need for transition are: key personal, moving adults out of children’s hospices in a supported and timely way, joint services in period of transition, increasing the confidence in adult services to care for YP and their families.

It is proposed that an ECHO working group be formed within the Work force &Education Steering Group to steer the work. It is proposed that the network focus on moving adults away from children’s hospices and increase confidence in adult services.

Support for Families

There are a number of organisations providing support to families with children with life limiting conditions across Yorkshire and Humber and it can be difficult to know where to start sometimes. The service finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.

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Support for Professionals

The Network provides access to regional training, sharing good practice and a Regional Annual Conference for professionals working in Children’s Palliative Care across the Region. There are links to CPD and available training resources available through this website.

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Bereavement Support

There are a number of organisations providing bereavement support to families with children with life limiting conditions across Yorkshire and Humber. The support finder on our website lists some of the organisations local to you and the best place to start is often your local hospice as they are a local hub and can offer information and advice about useful services.

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